Be T1D for a Day

I think this is a nifty little thing, although not even close to my life on a daily basis, but it should help you get a little bit of an understanding of the crap we do on a daily basis...

Throughout November, we're asking people to better appreciate what people with type 1 diabetes (T1D) experience every day, every hour by taking part in a unique mobile-based challenge: T1D for a Day.
When you sign up for the T1D for a Day text challenge, you agree to receive as many as 24 text messages over a 24-hour period that simulate the constant blood sugar testing, insulin injections, and dietary decisions that confront people with T1D.
While no virtual campaign can recreate the many needles required or the physical and financial tolls of this serious disease, T1D for a Day seeks to deepen understanding of the many heroic steps our friends and loved ones with T1D take each day.
Please sign up for the T1D for a Day challenge now!
Text T1D4ADAY to 63566. You will receive a confirmation text that completes your registration.

JDRF's Be T1D for a Day

Alternatively you could send me your phone number and I'll send you a text every time I do something diabetes related... Yeah, don't do that. I'd need to send you hundreds of texts...

Wordless Tuesday, or Not.

I don't know about you, but you can't bill Medicare anyway... I don't have it. Don't be THAT supplier. Oh wait, you already are.

Dumb supplier did send me my cartridges, but also 5 little zippy bags of 10 IV Prep wipes each (wtf?) and this crap envelope filled with more crap. I don't care right now, much less do I have the slightest idea what on earth this is about, as I've never seen it or heard of it before in my life and I've been through four or five suppliers.

It's Rant Time

So I need to order more cartridges. Not sets, not strips, just cartridges. My mom calls the new med supplier, because last month the insurance company told us we couldn't order straight from Animas anymore, and we needed to use this supplier. She called last month and set everything up so she could just call and order what I needed. [Note - this is the third time this year we've had to change suppliers, same insurance company though.]

Of course it can't be that simple. They ask for everything they asked for before and tell us they can't ship us the order, that we need the doctor's office to send something in, they need money from us (wtf? never had that before), and that they can't ship us test strips. We don't want freaking test strips [switched scrip to local pharm, getting them for $5 a month!], we know you can't give us them. Then she tells us she can ship us Insets. I don't want those either, I have a freaking ton of them. All I need are cartridges. The woman didn't know the difference between the two, because of course they also sell all the crap that medical suppliers do and they don't attempt to know what they're shipping to people.

Then they tell us they can only ship 4 boxes for a three month supply. 40 cartridges are not enough for me, as it's about 100u a day, and the cartridges are only 200u. Three months (90 days) should be 45 cartridges. I know you can't ship half a box, so ship me an extra box, dangit!

Add to the fact that the woman said they didn't have Opsite Flexifix tape when I'm almost positive they did. My mom even gave her the freaking item number! [I <3 Amazon, just bought some off there, although it was more expensive obviously.]

So I have no idea when I'll get my cartridges. I have about ten left I think, but I leave for college in ten days... Everything else is taken care of, getting my normal scrips filled on Monday so I'll go up north with 8 bottles of insulin for some inane reason. Bought about half my books, bookstore doesn't have the other ones for some reason. I went and got new glasses and they should be in next week so I can pick those up yay.

I feel like snails

I don't remember Kerri's post but you know what I'm talking about. I feel like absolute garbage. Sure my wisdom teeth are gone, but now I feel like puking my guts up and have an awful headache. I don't want any of this, it freaking sucks. My blood sugar's been in the high 300s since I got up. Rage bolusing is doing nothing and Dex decided it was a good time to conk out completely.

It's the amoxycillin doing this to me, but I can't fix it unless I don't take it. I hate this.

Any suggestions?

Things that used to be

My wisdom teeth are gone. None of them had come out yet and they would have wrecked my nice orthodontia so we finally got them taken out this morning [I wanted to get it done before going to college].  I couldn't eat for nine hours before and didn't really eat until three or four hours after. My mouth kept bleeding until I just decided to stop the gauze at which point I guess it stopped.

Had some regular jello that I couldn't properly appreciate as my tongue was still mostly numb. Pudding for dinner and I'll probably have ice cream later today. Scrambled eggs are on the menu for breakfast.

We lowered the basal for the night and I went into the surgery with 212mg/dl. I was out completely for maybe an hour. After my bg was fine, still in the 200s but that's been fixed obviously. I've got Vicodin which is acetaminophen based, which is unfortunate for my DexCom  because it's giving me weird numbers.

Some Updates

I think I'm going to be gradually updating the look of my blog or maybe not. Something I will do, that I've been meaning to do for some time, is make a video for the walk. I attended a lunch kick off event [first time in nine years I've been able to make it] yesterday and saw the most amazing walk video from @bleedingfinger and @sweet2thesoul - decided it finally needed to be done. I'm not a cute little kid anymore but I think stabbing myself a bazillion times is enough to warrant people giving money to a cause that will help me and the cute little kids. :D

I won't be there [college is ten hours away] but you can still be awesome and donate to my team, read my story, and donate to my team...

And I'm kind of working on a silly t-shirt design that doesn't really have anything to do with the JDRF walk theme this year... except that it involves diabetes heroes...

DexCom Deconstruction

yes, it is covered in dust...

see notes on flickr

It's actually an almost wordless Wednesday! For more pics see the flickr.

It's Been Awhile.

Hey there again. I've got some things to share, namely a DexCom in pieces, pictures of a sketchy Ping, and a story of Animas customer service. Still playing hockey once a week and rocking goalie.

I'm getting my 6-month-old Ping replaced... New one is coming in the mail tomorrow. This is why:

in addition, I just pushed a button and the screen's not coming on....

It's been freaking out off and on for the past couple of months in terms of the screen; flickering, not coming on, and generally being sketchy. I do drop it a lot, but not any more than my Medtronic I had previously, and that made it through four years no sweat. The lady at Animas took a long time to figure out my problem, I don't know if it was my ineptness at describing the problem or if she just wanted to make sure I was being serious that a six month old pump was being sketchy. I was on hold for like ten minutes but spent like twenty just going over the one thing that was wrong with it. Anyway it's okay, even though she told me not to use this one until I get the new one (I have a couple old Animas pumps kicking around) I still am. I'm too lazy to reprogram an entire pump for 18 hours of use, when this one's still working minus the screen.

I finally called today because it did it for two hours (no screen) and I realized that it might happen sometime when I didn't have the meter-remote in easy reach, and then I'd be screwed. (Basically, the Dex went off, I needed to bolus, couldn't on pump, went and tested then corrected with the meter which is super nice.)


I guess the moral of the story is if you break a pump, break it all the way? Off to download my data one last time on this pump...

ZAMBONI

Again with the falling off the earth thing! - And it's still hockey related.

My 18th birthday was Thursday, and this was my present! I got to ride the Zamboni during the second intermission of the Griffins game yesterday! It was awesome, and I have a new life goal - drive the Zamboni. The Griffins won 6-1, I saw Conklin play, and Chris Minard got a hat trick, so altogether an awesome day.

My team also won our game on Thursday 5-2 which was awesome, and I'm hoping to keep up the winning streak today.

I have an essay on blood and the circulatory system due on Monday and I really ought to be typing it, but I'm not!

Misc

What has taken over my life? Hmm....

HOCKEY.

I was sort of recently mentioned in the Griffins' game program as 'a child with an insulin pump' - and oddly enough, the first game I attended that had this program [they have about one a month] was the JDRF game! I freaked out and had to announce this to our chapter's CEO who was happy for me. :P I'm the only kid with diabetes who plays with the youth foundation.

I'm just wicked awesome. I can CAD like nobody's business. Not really. But for having just started threeish weeks ago, I'm pretty awesome. I can stand on my head [figuratively] in goal. I play a mean bari sax solo.

It's 7:15! Last week I wrote a paper for college writing. It was a personal narrative. I wrote mine about my diagnosis. Maybe someday you'll get to read it.

Thursday I stuck my hand in a pig heart. Friday I was on a bus for four and a half hours. Saturday I was on the ice for three hours and SAW CHRIS OSGOOD! I was less than a hundred feet from him. Sunday I made a three-dimensional perler bead thing - they're my new obsession. My birthday is in ten days, and I get to go to the hockey game the day after. And this weekend, my cousins are coming to watch one of my games and then we get to have cake afterward to celebrate.

I  like cake. And the wireless keyboard is having spasms again:

This is what happens when I try to type fast like I normally dd. Then it stopes freaking out and randomly ruuns to normal and then stops working again. I don'tlike lag.

I'm not dead.

Who's that? Curt Fraser of the Grand Rapids Griffins! Rocking a MiniMed!

Winning.

 This is today. I ran out of insulin at lunch... Because it was 11.25 units... This was at 12:30, and I got home about two hours later to this:

Pretty sure Charlie Sheen would call that 'WINNING'. I've got a no-hitter right now too.

It's low calorie. Why doesn't it say ZERO calorie? Please answer, FDA.